Our participating neurological charities and support groups all have a seat on our quarterly MNN Steering Group meetings; they are:
Alzheimer's Society, South East
Ataxia UK
Dystonia UK. Autumn update
FND Action (Functional Neurological Disorder). Trustee Wanted - to see full advertisement, please click Here. Are you passionate about wanting to make a difference to people who face adversities because of their health and social care needs? If so. then we think that you will be interested in knowing more about us.
Who are we? FND Action’s journey started in 2016, when we became the first registered charity in the UK to support people diagnosed with Functional Neurological Disorder (FND). You may not have heard of FND before, but it is an extremely common diagnosis in Neurology that affects thousands of people in the UK. To find out more about us please visit our website: https://www.fndaction.org.uk. If this is an opportunity that you may be interested in, and reside anywhere in the UK, then we would love to hear from you. Please get in touch with us at: contact@fndaction.org.uk and we can arrange a date to discuss further.
FASD Awareness (Foetal Alcohol Spectrum Disorder Awareness). Monthly online support group meetings are held on Thursdays from 10.30am to midday. For more information and online registration please click HERE. To view invitation to FASD webinar 'In conversation with Cindy Perkins' on Thursday 20 April 8.15pm to 9.15 pm, please click HERE. This webinar is on the Zoom platform and addresses FASD Management Plans - the voice of the lived experience.
HSP Support Group (Hereditary Spastic Paraplegia): People with Hereditary Spastic Paraplegia (HSP), their families and carers are at the heart of everything we do:
Our information and support helps improve the quality of life for those affected by HSP. Our friendly support community helps with sharing ideas and reducing feelings of isolation.
We support research into HSP, including developing treatments and improving understanding.
Motor Neurone Disease Association
Mid-Kent MNDA has published its Autumn 2023 newsletter - Mid Kent Matters. To view the newsletter, please click Here,
Multiple Sclerosis Society, Medway & Swale Group:
To see the September and October 2023 newsletter, please click HERE.
Multiple System Atrophy Trust Has recently published the results of a MSA NEED SURVEY. 73% of respondents said that MSA severely impacted their quality of life with only 5% saying that they could still live independently.
Walking Football: Tuesday mornings, 10am to 11am, Chatham Town FC, Bournville Rd., Chatham ME4 6LR. Please click HERE to see flyer.
To see World Parkinson's Day 2020 video, please click HERE.
All of these participating charities have a seat at the quarterly MNN Steering Group meetings